In some ways, I’m probably late to the party. Like many of my friends and fellow columnists at Friedreich’s Ataxia News, adapting to change has been part of living with a progressive disease.
I’ve read about Matt Lafleur’s tough journeys on his trike, how Kendall Harvey’s dreams about motherhood have changed as her Friedreich’s ataxia (FA) progresses, and how Katie Griffith would give anything to cure FA and watch her son live the life she once thought he would. I know we are all adapting to change, learning how to work around our problems, and continue with our plans, as much as we can.
Although my progression is different than Matt’s, and I don’t have the parenting experience of Kendall or Katie, I’ve still had to make adjustments in ways I never thought I would.
Read more at: https://friedreichsataxianews.com/columns/2022/02/01/living-with-progressive-disease-means-adapting-change/