Since I began my Friedreich’s ataxia (FA) journey in 2013, expectations have become a huge part of my life.
Before my diagnosis, I had never even heard of FA, let alone expected to engage in a lifelong battle against it. I felt anchorless in a raging sea of uncertainty. All of my plans and expectations went out the window, and I was suddenly on a mission to find a new anchor.
I was desperate for a doctor to give me a timeline of what I could expect with FA. When will I start falling regularly? Require a walker? Need to make my home accessible? Become dependent on a wheelchair? Develop cardiomyopathy?
Read more at: https://friedreichsataxianews.com/columns/2022/02/03/self-awareness-helps-navigate-unexpected-life-fa/