Hello there! It was one year ago this month that I wrote my first column for Friedreich’s Ataxia News. I’m so thankful that I’ve been given this opportunity to share my thoughts and feelings as a caregiver. Thank you for reading each month and coming along on this journey with me!
My son, Noah, started having voice issues in his early teen years. We chalked it up to puberty and figured that it would work itself out with time.
Until you live with something day in and day out, you don’t realize how much it can affect your life. Noah sounded like he had lost his voice and was hoarse all the time. It became such a problem for him. He wasn’t being understood, and he felt left out in crowds when he just couldn’t compete with the noise.
Read more at: https://friedreichsataxianews.com/columns/2022/02/18/speaking-up-accessibility-problems-change/